- Chicago
- NADS (National Association for Down Syndrome)
- P.O. Box 206
- Wilmette, IL 60091
- (630) 325-9112, Fax: (630) 325-8842
- Bill McCarthy, President
- Diane Urhausen, Executive Director
- M. Sheila Hebein, Editor
- Ana Garcia, Family Support
- Español/Spanish: Rosalinda García Banuelos (773) 925-5026
- North
- Susan Mack and Bill Hans (847) 498-0730
- Chicago North
- Jane & Bill Altman (773) 529-0545
- Brad & Cheryl Bane (773) 665-8315
- Northshore
- Laura Pelos (847) 509-9283
- Anne Maddock (773) 777-9537
- Northwest Suburbs
- Ups For Downs (United Parent Support Group for Down Syndrome)
- 1069 West Golf Road
- Hoffman Estates, IL 60194
- (847) 885-6216
- Fax: (847) 885-4901
- E-Mail: info@upsfordowns.org
- Sandy Pazerunas (847) 705-0715
- Mike Reninger (847) 301-0702
- Pat Shimanek (630) 595-8147
- Polish: Krystyna Dabrowski (847) 962-4820
- Hispanic: Blanca & Carlos Santillan (847) 963-1320
- Near Western Suburbs
- Carol Boyke (708) 795-7470
- McHenry County
- Family Ideas Network for Down Syndrome (FINDS)
- P.O. Box 1441
- Crystal Lake, IL 60039-1441
- Ali Garner (815) 444-8672
- Mary Fisher (815) 444-8672
- Teri Lawson (815) 854-0611
- Cynthia Harper (815) 788-0566
- Elgin Area Down Syndrome Parent Support Group
- Easter Seal Center
- 799 South McLean Boulevard
- Elgin IL 60123
- (847) 742-3264
- Jayne Shover Rehabilitation Center
- Chris Frederick (847) 742-3265, ext. 123 or Sandy Holm
- Lake County
- Down Syndrome Development Counsel
- P.O. Box 906
- Mundelein, IL 60060
- Contacts:
- President: Patrick Collins (847) 265-8482
- Secretary: Laura Smith (847) 955-9965
- Hispanic: Belinda Hidalgo (847) 838-4398
- Betsy Thompson (847) 540-0018
- Debbie Pogose (847) 973-1622
- South
- Beverly/Evergreen Area
- Kim Mueller & Cathy O'Keefe (773) 881-8949
- Southwest Suburbs
- Down Syndrome Support
- 10052 South Bode
- Plainfield, IL 60544
- (815) 577-7903
- E-mail: info@dssupport.net
- Jennifer Paganessi (815) 815-577-7903, (815) 439-8693
- Hispanic: Monica Archbold (630) 585-1586
- South Side
- Carol Hill (773) 208-3058
- South & Southwest
- Sharon Barnhill (708) 396-3701
- Far South Suburbs
- Jackie Rotondi (708) 957-2258
- Down in the Southland
- Juliette De Nova (708) 614-6118
- West Suburban Parent Support Group
- 1404 Middlebury Drive
- Aurora, IL 60504
- Contact: Beth Spenadel (630) 942-0310
Aurora
Sharon Ream (630) 554-9888
Western Suburbs
Jackie Ray (630) 904-9849
Fox Valley Area
Carrie Hollman (630) 208-5075
Far Western Area
Janis Dunklau (815) 627-9356
Gigi's Playhouse
1069 West Golf Road
Hoffman Estates, IL 60194
(847) 885-PLAY
Contact: Nancy Gianni (847) 783-6717
Northern Illinois Down Syndrome Parent Support Group
Easter Seals Children's Development Center
650 North Main
Rockford, IL 61103
Contact: Patti Hobbs (815) 965-5745 ext. 218
K.I.D.S. (Keeping Involved with Down Syndrome)
137 6th Street
Silvis, IL 61282
- Contacts:
- Tina and Eric Strieder
- 421 19th Street
- Moline, IL 61265
- (309) 797-1611
- Rich and Nella Olson
- (563) 359-9654
Meetings are held the second Saturday of the month at the Carriage House, Ben Butterworth Center in Moline from 10:00 a.m. to 11:30 a.m.
Lincoln-Way Area Down Syndrome Association
151 Forest Avenue
New Lenox, IL 60451
(815) 485-8401
Denise Bockwoldt
360 Nevada Street
Frankfurt, IL 60423
Livingston Area Down Syndrome Society (LADSS)
RR #1, Box 196
Chatsworth, IL 60921
(815) 689-2202
Contact: David Melvin
Central Illinois Down Syndrome Organization (CIDSO)
P.O Box 595
Normal, IL 61761
Jean Bates, President (309) 452-2555
Bill and Diane Crutcher (309) 452-5556
- New Parent Outreach:
- Kevin and Brenda Harms (309) 378-2388
- Rick and Jennifer Bauersfeld (309) 874-2038
- Jim and Deb Presley (309) 829-9042
McDonough County Down Syndrome Support and Advocacy Group
- Contacts:
- Laura and Ritchie Gabbei (309) 837-6500
- Angela and Jeremy Benson (309) 769-5468
Becca's Karing Individuals for Disabilities (bkids)
P.O. Box 1126
Galesburg, IL 61402
(309) 341-2394
Becca Knaack, President & CEO
Champaign County Down Syndrome Network
2708 Willowpark Drive
Champaign, IL 61821
(217) 893-8183 or (888) 893-8183
President: Melissa Hoerner
Treasurer: Cathy Ward, (217) 351-4163
E-mail: info@champaigndsn.org
Down Syndrome Support Group
Blessing Hospital
Broadway at 14th Street
Quincy, IL 62305
(217) 223-8400, Ext. 4190
Contact: Lisa Neisen
Heart of Illinois Down Syndrome Association, Inc.
c/o Bethel Lutheran Church
425 N. Missouri Avenue
Morton, IL 61550
(309) 712-4852
Fax: (309) 694-2984
Meri Tucker (309) 694-2984, President
Jamie Van Buskirk (309) 691-4753, Secretary
Teri Ehrenhardt (309) 467-6113, Newsletter Editor
Bringing Up Down Syndrome (BUDS)
P.O. Box 11
Arenzville IL 62611
(217) 997-5879
E-mail: briggsj@frontiernet.net
Lincoln Land Down Syndrome Society
317 Astoria Road
Springfield, IL 62704
President: Tim Rigby (217) 622-1992
Julie Sattler (217) 546-2215
Riverbend Down Syndrome Association 
Marc Mitchell, President
Victor Bishop, Newsletter Editor
Metro-East Down Syndrome Alliance
Shiloh, IL
Betsy Caines (618) 593-6169 or (618) 566-4267
Public Relations and Event Planning: Amber Brodak (970) 985-1576
Southern Illinois Down Syndrome Support Group
419 Oak Street
Cobden, IL 62920
(618) 893-4485
Cris Byrd (618) 687-2626
Julie Anderson (618) 922-5846
Southern Illinois Down Syndrome Family Support Group
Goreville, IL 62939
Marcie Simon (618) 995-1888