Down Syndrome Internet Resources


Web Sites Indices
Recommended Down Syndrome Sites on the Internet compiled by Len Leshin, M.D., F.A.A.P.
Speech/Language Web Sites
Communicating Partners
The Down Syndrome Educational Trust
Literacy Web Sites
Love and Learning: Teaching Reading and Language
Special Reads for Special Needs
Medical Guidelines
Clinicians' Guide to Physical Health Problems of Older Adults With Down Syndrome icon, Journal on Developmental Disabilities 12(1) (2006 Spring)
Clinical Report—Health Supervision for Children With Down Syndrome icon, Pediatrics 2011;128:393-406
Health Care Guidelines for Individuals with Down Syndrome: 1999 Revision icon, Down Syndrome Quarterly, Sep 1999 4(3):1-16
Health Care Management of Adults with Down Syndrome Am Fam Physician Sep 2001 15;64(6):1031-8, 1039-40
Health Supervision for Children With Down Syndrome Pediatrics Feb 2001 107(2):442-449
Health Watch, National Down Syndrome Congress
Interactive Down Syndrome Growth Charts
JAMA Patient Page, JAMA Feb 28, 2001 285(8):1112
Medical management of children with Down's syndrome, Current Paediatrics 2001 11:57-63.
Primary Care of Infants and Young Children with Down Syndrome American Family Physician Jan 15, 1999
The Clinical Assessment and Management of Children, Young People and Adults with Down Syndrome, New Zealand Ministry of Health Oct 2001
Message Boards
Baby Center Down Syndrome Community
HealthBoard.com Down Syndrome Message Board
National Association For Down Syndrome Discussion Board
Trisomy 21 Online Community
Uno Mas! Down Syndrome Online
List Servers
Great Britain
Downs-Heart
Description: A contact point for families who have a member with Down's syndrome and associated congenital heart disease. Support and information for those whose child is facing heart surgery, who has had surgery, those whose condition is inoperable, and those families who are bereaved.
Owner: Penny Green
URL: http://groups.yahoo.com/group/Downs-Heart/
Website: http://www.dhg.org.uk

DSRF
Description: Informal talk and discussion about all Down's syndrome medical issues and research in general in the UK/Scotland and Ireland.
Owner: Leo@dsrf.co.uk
URL: http://groups.yahoo.com/group/DSRF/
Website: http://www.dsrf.co.uk

IND-DOWNS-SYN-UK-LIST
For informal support, discussion and information — this is a list for UK topics and people and those interested in them.
Archives: http://listserv.down-syndrome.net/archives/ds-uk.html

USA
Dads Appreciating Down Syndrome
Description: Our mission is to assist and support, through fellowship and action, the fathers and families of people with Down syndrome.
Owner: dadsds-owner@yahoogroups.com
URL: http://health.groups.yahoo.com/group/dadsds/
Website: http://www.dadsappreciatingdownsyndrome.org/

downsyndrome
Description: A place where parents can get together to discuss all the issues related to Down syndrome. Here you can meet with other parents and learn what other parents are doing for their children with Down syndrome.
Owner: kemp@triton.net
URL: http://groups.yahoo.com/group/downsyndrome/

DownSyndromeInfoExchange
Description: Our goal is to offer a place where you can ask about everything related to Down syndrome (DS, Trisomy 21) and discuss anything as long as it's done in a civil manner. We want to encourage people to bring their viewpoints and experiences to the list so there are many choices as all the kids are different, and what works for one, may not work for all.
Owners: Carol, Kathy Ratkiewicz, Julie
URL: http://health.groups.yahoo.com/group/DownSyndromeInfoExchange/

DOWN-SYN
Description: Discussion list for Down Syndrome open to parents, siblings, friends, doctors, teachers and, of course, to people with Down Syndrome
Owner: Bill McGarry or DOWN-SYN-request@listserv.nodak.edu
Archives: http://listserv.nodak.edu/archives/down-syn.html

down_syndrome
Description: For parents of children with Down syndrome to brag, talk about concerns, medical problems, schooling, therapy, etc.
Owner: soonerangel@hotmail.com
URL: http://health.groups.yahoo.com/group/down_syndrome/

Down Syndrome Asian Parents Group
Description: Online support group to help connect with families according to their child's age and individual needs; obtain updated resources on education, health, special needs services and more; connect parents with various professionals in their area for advice; share their experiences and provide/receive emotional support through other families.
Owner: Dr. Sindoor Desai
URL: http://health.groups.yahoo.com/group/asianparentsgroup/
Website: http://www.sujeet.com

DSTNI
Description: For parents of children with Down syndrome (professionals welcome). This list is pro-TNI.
Owner: dilela@i-55.com or DSTNI-owner@yahoogroups.com
Co-moderator: Julie Romero
URL: http://groups.yahoo.com/group/DSTNI/

DS-AUTISM
Description: The Down Syndrome & Autistic Spectrum (DS-AUTISM) listserv was created so families, parents, and professionals interested in this dual diagnosis could discuss issues related to medical, educational, and family concerns in a free, and open forum.
Owner: jmedlen@qwest.net
URL: http://groups.yahoo.com/group/ds-autism/

DS_Teens_Plus
Description: Dedicated to the parents, family members and friends of teens and "olders" born with Down syndrome.
Owner: russeff@whidbey.com
URL: http://groups.yahoo.com/group/DS_Teens_Plus/

Einstein-Syndrome
Description: A list for parents of children with Trisomy 21 who want to free their child from the negative expectations of what is commonly referred to as Down syndrome. Positive approaches to health, nutrition, disease prevention, education, therapies, social and spiritual training may be discussed. This includes, but is not limited to TNI, vitamin therapy, NACD, early intervention and schooling options. The list owner insists that all posts be kind and respectful.
Owner: miriam@sigecom.net
Archives: http://listserv.tbinet.org/archives/einstein-syndrome.html
URL: http://einstein-syndrome.com/

Home Education and Down Syndrome
Description: A group for busy homeschooling families educating a child with Down syndrome. Discussions limited to home education and the special needs of our children.
URL: http://health.groups.yahoo.com/group/HomeEducationAndDownSyndrome/

MosaicDS
Description: A support list for parents whose babies/children/adult children have been diagnosed with Mosaic Down syndrome.
Owner: njboxers@earthlink.net
URL: http://www.mosaicdownsyndrome.com

UPSNDOWNS
Description: We are a supportive international group and have been in existence since 1995. Our list is unique in that we focus on the family and not just the family member with Down syndrome.
Owner: C1ndysue1@aol.com
URL: http://health.groups.yahoo.com/group/UpsNDowns/